Jaishvi, a beautiful seven-month-old baby girl, faces a heartbreaking struggle that no child should ever endure. Diagnosed with Spinal Muscular Atrophy (SMA), a rare and life-threatening genetic condition, Jaishvi’s body is losing its strength rapidly. This cruel disease has left her with limited movement and severe difficulties in breathing, feeding, and swallowing. Every moment for Jaishvi is a battle for survival, and she urgently needs our help.
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What is Spinal Muscular Atrophy (SMA)?
SMA is a muscle-wasting disorder that robs children of their ability to perform basic functions. The condition causes motor neuron loss, leading to progressive muscle degeneration and weakness. Children with SMA experience difficulty in moving, swallowing, and even breathing, as the disease primarily affects muscles used for these functions. Without intervention, the disorder can become fatal.
For Jaishvi, her life now depends on a critical injection called Zolgensma, a groundbreaking therapy designed to treat SMA. However, the cost of this treatment is staggering—₹14 crores. While it offers a potential cure, the exorbitant price is beyond her family’s financial reach.
The Emotional and Physical Toll on Jaishvi and Her Family
Jaishvi’s condition has turned her world upside down. Once a healthy, vibrant infant, she now lies in hospital beds, attached to machines that assist her with breathing and feeding. For her parents, this has been an emotional roller coaster. Jaishvi’s father, Prashant Kumar, an Air Force officer, and her mother, Puja, are doing everything they can to save their daughter. They have knocked on every possible door, seeking assistance, including appealing to Prime Minister Narendra Modi for support.
Despite their best efforts, they need your help to raise the remaining funds for the injection that can save Jaishvi’s life.
Why Does Jaishvi Need ₹14 Crores?
Zolgensma manufactured by Novartis Gene Therapies, Inc., often referred to as the world’s most expensive drug, is a one-time gene therapy treatment. It works by replacing the defective SMN1 gene in SMA patients, offering them a chance to live a more normal life. The therapy has shown promise in helping infants like Jaishvi regain some strength and muscle control, but time is running out.
Jaishvi’s family needs to raise the funds before the end of 2024 to ensure she can receive this life-saving treatment. The sooner she receives it, the better her chances of survival and improved quality of life.
How Can You Help Save Jaishvi?
This is where you come in. By contributing, no matter how small the amount, you can be a part of Jaishvi’s fight for life. Imagine a future where this innocent child can grow up, walk, play, and smile like any other child—all made possible because of your generosity.
Impact Guru a Fundraiser initiative started by Impact Guru to Help Jaishvi.
https://www.impactguru.com/fundraiser/help-jaishvi-yadav-2
Here are the details to donate:
Bank Account Details:
- Bank Name: RBL Bank
- Account Number: 2223330002979391
- Account Name: Jaishvi Yadav
- IFSC Code: RATN0VAAPIS
(The digit after ‘N’ is zero)
For UPI Transactions, you can use:
supportjaishvi@yesbankltd
In addition to individual contributions, we humbly appeal to large corporations, philanthropic organizations, and charitable institutions to step forward and make a significant impact. With your substantial resources and commitment to social responsibility, you have the unique ability to change the course of Jaishvi’s life. A generous donation from your institution could cover a large portion of the treatment cost and inspire others to follow suit.
80G Tax Benefit
Your contribution qualifies for an 80G tax benefit, making your donation even more impactful. Not only will you be saving a life, but you will also be reducing your taxable income.
Let’s Make This a Movement
The local community of Mainpuri has already set an example by coming together for other critical cases. In fact, Mainpuri recently raised ₹30 Lakhs to help another patient receive treatment for SMA. They are once again rallying for Jaishvi, but this mission requires national and global support.
By spreading the word, we can amplify our efforts and ensure that Jaishvi’s story reaches every corner of the world. Share this post with your friends, family, and social media networks. Encourage others to contribute. Every click, every share, and every rupee matters.
Let’s Give Jaishvi a Future
Jaishvi’s situation is urgent, but it’s not without hope. Together, we have the power to give her a future free from suffering. Let’s come together to ensure that Jaishvi’s smile is not lost to SMA. Your contribution can be the miracle she desperately needs.
Let’s save Jaishvi’s life, one donation at a time.
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